The daily lives of disabled people are impacted by ‘unhelpful, exclusionary or downright abusive’ practices, according to a major research project looking at issues facing those with disabilities in the UK today.
Getting Things Changed (#GettingThingsChanged) is the largest research project of its kind, involving 448 participants who gave insights into the many barriers faced by disabled people and indicated some of the changes which need to happen.
The research, led by the University of Bristol and carried out over three years, was fuelled by concerns that policy and law do not always translate into practice.
Sue Bott CBE, Deputy Chief Executive of Disability Rights UK, said:
"Disability Rights UK were pleased to be part of this project. It's one thing to talk about the rights disabled people have but quite another to find ways to put those rights into practice.
"This research provides the evidence that many public institutions could do much better to promote the rights of disabled people and support us to fulfil our potential.
"Why should we disabled people continually have to fight for our rights? It’s a wake-up call to public bodies to put in place practices and processes that will guarantee our rights."
The findings from Getting Things Changed, being presented at a conference held in Bristol today, demonstrate that many public institutions such as hospitals or universities aren’t providing 'reasonable adjustments' for disabled people as outlined in the Equality Act 2010.
Research highlighted that disabled people and those working with them felt disability was still treated as a negative category in universities, the media, and even in hospitals.
Researchers have made a series of recommendations for policy makers and practitioners. These include:
- All public institutions must have systems in place, preferably led by disabled people, to monitor and report on how they’re adhering to the Equality Act 2010.
- Disability needs to be valued as part of increasing diversity within organisations, and to be seen as a way of promoting better ways of doing things.
- Informal, more relaxed settings are often the key to better practices, for instance in personal support but also at universities, within hospital waiting rooms, or in dementia groups.
The scope of the research was wide, covering a range of situations such as groups for people with dementia, music education in special schools, representation of disabled people on TV and in the media, hospital care, and support for parents with learning difficulties.
Getting Things Changed found countless practices which exclude or marginalise disabled people, both in the material infrastructure of buildings as well as the ways in which people interact.
For instance, people with dementia might rely on familiar, clear signage to find their way in and out of a building, or the facilities in it, but they also need people who will give them time to communicate or understand how to wait for a response in a respectful way.
In hospitals, disabled people are not always able to access services easily; their information or communication needs were not always met or physical needs, such as the use of wheelchairs, were difficult for hospitals to accommodate.
Getting Things Changed was funded by the Economic and Social Research Council (ESRC), led by the University of Bristol, with key partners including Disability Rights UK (DRUK), the National Development Team for Inclusion, Loughborough University, Lancaster University and the University of York.
